A wonderful family who is close to all of us at YDKJ is struggling to come to terms with a family member’s ALS diagnosis. We’re taking action by donating money to their team which benefits the Greater New York Chapter of the ALS Association.
There are three ALS fundraising walks in New Jersey this month. Our friends are walking in Saddle Brook on May 31st. Please consider donating to their team or walking with them by visiting this website.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The degeneration of the motor neurons in ALS eventually lead to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed. The onset of ALS is insidious with muscle weakness or stiffness as early symptoms. Progression of weakness, wasting and paralysis of the muscles of the limbs and trunk as well as those that control vital functions such as speech, swallowing and later breathing generally follows.
It is estimated that ALS is responsible for nearly two deaths per hundred thousand population annually and about 5,600 people in the U.S. are diagnosed with it each year. As many as 30,000 Americans may have the disease at any given time. Although the life expectancy of an ALS patient averages about two to five years from the time of diagnosis, this disease is variable and many people live with quality for five years and more. More than half of all patients live more than three years after diagnosis. ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries and it can strike anyone.
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